Help our friend Irhad Rizvo
Dear All,
Irhad Rizvo Durakovic is 23 years old and he is fighting for his life and he needs your help.
Irhad loved playing football every Friday night with his friends. He also loved playing drums and he was dreaming that his band would one day become famous. Recently all this changed as he has been diagnosed with nvCJD a variant of Creutzfeldt–Jakob disease (CJD). In the space of several months his life changed upside down. Irhad was slowly losing the control of his actions, then he was losing the ability to walk. Today, his mother is his carer, tirelessly looking after him day and night.
Irhad’s best shot is a treatment at Western General Hospital in Edinburgh, Scotland. A treatment has been scheduled by the end of the month. His mum is trying to raise £16,000 towards the treatment (PPS treatment) that could save his life.
Irhad is currently in the Chelsea & Westminster hospital in London, following an operation in which a catheter was placed into his stomach. This catheter is used to feed food as Irhad has lost ability to chew and swallow food in a natural way. We are hoping that Irhad will soon regain strength as the PPS treatment is physically demanding. A member of Bosnia Appeal recently visited Irhad in the hospital and was given permission by his mother to publish a video of Irhad.
Bosnia Appeal is collecting funds and is also trying to raise awareness about this serious illness and urge anyone who could help by recommending a doctor or treatment that could save Irhad.
Please help if you can, even just by spreading the word.
You can send your donations to:
Bosnia Appeal
Crossover Centre
619 Bordesley Green
Birmingham B9 5XZ
Bank transfer:
Lloyds TSB Bank
Account holder: Bosnia Appeal
Account number: 02807279
Sort code: 30-00-03
BIC: LOYDGB21003
IBAN:GB63 LOYD 3000 0302 8072 79
PayPal:
DONATIONS RECEIVED VIA PAYPAL
1. E.C. USA, £50.00
2. T.B. Denmark, £15.00
3. B.S. Croatia, £15.00
4. D.M. Bosnia and Herzegovina, £50.00
5. I.S. UK, £20.00
6. J.K. Czech Republic, £50.00
7. D.K. Croatia, £10.00
8. D.I. Slovenia, £20.00
9. DZ.H. UK, £50.00
10. J.B. Croatia, £10.00
12. J.R. Croatia, £5.00
13. D.N. Croatia, £87.00
14. F.K. UK, £30.00
15. S.D. Croatia, £50.00
16. I.D. Croatia, £5.00
17. F.B. USA, £10.00
18. A.S. Bosnia and Herzegovina, £3.00
19. A.Š. Bosnia and Herzegovina, £10.00
20. J.T.S.E. Norway, £5.00
21. I.K. Germany, £65.00
22. H.R. Bosnia and Herzegovina, £15.00
23. F.H. UK, £30.00
24. D.A. UK, £50.00
25. M.F. Bosnia and Herzegovina, £30
26. A.M. UK, £40.00
27. A.M. USA, £30.00
28. H.T. USA, £30.00
29. M.T. USA, £20.00
30. M.S. UK, £50.00
31. L.S. Germany, £10.00
32. R.P. USA, £10.00
33. N.M. Norway, £100.00
34. Z.M. Swiss, £61.32
35. S.K. UK, £30.00
36. M.G. Austria, £10.00
37. A.H. Australia, £60.00
38. A.K. UK, £50.00
39. M.K.G. Denmark, £26.71
40. R.B. Austria, £20.00
41. E.L. UK, £10.00
42. E.B. USA, £25.00
43. M.T. Bosnia and Herzegovina, £15.00
44. L.J. Albania, £5.00
45. G.C. Hungary, £20.00
46. R.T. UK, £20.00
47. A.G. Sweden, £5.00
48. A.Z. Norway, £62.00
49. B.D. Canada, £100.00
50. S&A.G. Country Unspecified, £50.00
51. A.P. & A.B. UK, £500.00
52. G.D. Australia, £100.00
53. D.B. Bosnia and Herzegovina, £85.95
54. S.P. Australia, £63.00
55. F.M. UK, £35.00
56. A.S. USA, £50.00
57. N.E. Norway, £25.00
58. L.J. Kosovo, £62.00
59. K.K.J. Hungary, £60.76
60. DJ.D. Slovenia, £130.00
61. V.J. Canada, £65.00
62. I.J. Canada, £50.00
63. N.P. Sweden, £20.00
64. I.D. Netherlands, £10.00
65. A.K. Australia, £30.00
66. Staff at Colemans – Ctts Solicitors Kingston, UK. £167.25
67. R.L. UK, £50.00
68. A.R. Germany, £200.00
69. T.B. UK, £25.00
70. E.S. Denmark, £23.00
71. J.M. UK, £50.00
72. R.D. UK, £50.00
73. V.R. UK, £10.00
74. J.H. USA, £20.00
75. C.S. UK, £25.00
76. N.D. UK, £10.00
77. G.W & R.E. UK, £30.00
78. A.M. UK, £50.00
79. F.F. Unspecified, £10.00
80. E.LJ. Unspecified, £150.00
81. T.P. UK, £20.00
82. G.C. Hungary, £30.00
83. M.P. Italy, £10.00
84. A.D. Canada, £30.00
85. Merhamet Sweden, £300.00
86. J.M & S.P. UK, £150.00
87. I.I. Canada, £100.00
88. A.M. France, £130.00
89. N.T.S. USA, £100.00


Ovaj post ima 53 komentara
September 23rd, 2010
HI my name is christine and my only son died of vcjd here in the uk on 16th december 2007 since then I have launched a campaing http://www.justiceforandy.com investigating the truth surrounding vcjd and also raising awarness. I would very much like to get in contact with Irhads mother and support her through this time. There are many families in scotland who have been affected by vcjd who i know would be more than happy to support Irhad and his mother when the come to scotland. Please pass on my details to the family mschristinelord@************ I am also a freelance journalist and anything i can do to help let me know. YOu cant watch a documetary I made about my son Andrew on the website. God bles Irhad and good luck christine
September 29th, 2010
If you have info about paypal, please share here on the page. It is the easiest and fastest way to transfer money.
Warmest regards to Irhad and his mom.
Alma
September 29th, 2010
I have contacted Irhads former “workplace”, community VATSIM regarding this sad matter, where it is being threated very seriously on top level and the message will be spread to over a milion users in hope of help. Contact-email will be forwarded to his mom asap. We are spreading the message further on, and all wishing the best for Irhad and Indira too! Pozdravljam vas.
September 29th, 2010
Dear Alma,
Thank you for your comment.
We have set up a PayPal account but they are taking time to approve it. Their website claims 48 hours resolution time but despite providing all required documentation and after a number of calls and emails to PayPal we are still waiting for the approval. We are simply shocked by the lack of understanding and action from PayPal.
September 29th, 2010
Eselamu alejkum brate
Ja nemam nešto novaca. Moja dova koju ču uputiti Allahu za tebe može biti mnogo jaća nego bilo koji lijek jer jedino dova bratu u odsusutvu je nešto što se prima kod Allaha bez nekih uslova većih………..
Selam od Kenana
September 29th, 2010
I understand that his mom and Christine are in contact, and VATSIM has her contact too.
We have internally in the divisions CROvACC, SCGvACC and vACCBiH decided not to make any charity events as first thought, as that will by research not bring the help asap and take much time to spread the message, gain the traffic and hereby arrange. Also we think, that we will not gain as much money, as we can´t control if people contribute or not.
Therefore we focus on the contacts and spreading the msg as much as possible between contacts worldwide.
I am tomorow going to take the case up in my school to announce it and hang prints of this page. I think when the PayPal account gets active, it will be better.
All the best, know that we think about you and doing max to help. Be strong and believe.
September 30th, 2010
I am happy to announce that the PayPal option is now enabled. You just need to click on the button DONATE and follow the instructions.
September 30th, 2010
i am deeply upset to hear this news. i have known Irhad for some years now and always enjoyed working with him. please pass my best wishes to Irhad and his mother and my donation will be sent today.
we must all pray for a recovery and a succesful operation.
ian
September 30th, 2010
Dear Ian,thank you for the reaction on my email and hereby your donation and wishes. This is a proof of that the msg is being spread! Rgds.
September 30th, 2010
Admin, can you please briefly advise, if the donations are progressing?
September 30th, 2010
Thank you all for your comments and for your support.
I can confirm that donations are now coming in via PayPal.
October 1st, 2010
Thank you admin, sounds good. Danish public trough shop dashboards, news agencies and helth departement is contacted, hopefully with a positive reaction.
People from BiH and the region can check Croatian Aviation Forum, where we also have updates on the situation and discussion in native language: http://zrakoplovni-forum.hr/forum/viewtopic.php?f=47&t=6654
October 2nd, 2010
Still around 75% of the money is needed, if I am not toally wrong.
So please support!
If you know someone in UK-aviation sector, helicopter company and a airline – as helicopter transport for operation and airline transfer of nures to Edinburgh is necessary. And also if you know someone in UK-health sector, private hospitals etc., as nurses and PPS also is needed, please contact us via Bosnia Appeal, Facebook etc. and help trough your contacts!
Facebook Group is created, please add and share:
http://tinyurl.com/help-irhad
Adjustements to be expected the next days, as we learn more evey minute.
Thank you and help Irhad!
October 3rd, 2010
Zdravo,
joj ova vjest je me sokirala- neki dan mi je Irhad piso email nakon , ja mislim 4 godine i ja nisam imao vremena da mu odgovorim.
Imam kucni broj ali nebi volijo smetati. U kakvom stanju je Irhad trenutno?
Trazio sam po njemackim stranicama i naso sam jednu stranicu gdje je se uspjelo umanjiti bolest sa nekom terapijom. evo link
http://huk-coburg.gesundheitsportal-privat.de/Krankheiten/Creutzfeldt-Jakob-Krankheit/Therapie/
Pozdrav i nadajmo se cudu jer je Irhad cudo od ljudine!
Toni
October 3rd, 2010
Zdravo Toni, long time no seen.
Preporucujem ti da HZF bez log ina pratis temu, gdje sve novo sto znamo napisemo, da ih tako za sad ne ometamo:
http://zrakoplovni-forum.hr/forum/viewtopic.php?f=47&t=6654
A ti probaj u svojoj lokalnoj zajednici da prikupis nesto, mozda si u kontaktu sa zdravstvom ili avio-sektorom itd. Ugl. vidi na forumu, pise u zadniim postovima vrlo jasno sto je najbitnije trenutno. Takodje imaju zakaceni A4 letci koje mozes dijelit nasem narodu.
Hvala ti. M
October 4th, 2010
I have posted the list of donations received via paypal. The list contains the initials, country and amount of donation.
Thank you very much to all for your support.
October 4th, 2010
Kako je sad najbolje brebaciti pare? Nemam Kraditne kartice za paypal. iz njemacke saljem.
jel to Bank transfer:
Lloyds TSB Bank
Account holder: Bosnia Appeal
Account number: 02807279
Sort code: 30-00-03
BIC: LOYDGB21003
IBAN:GB63 LOYD 3000 0302 8072 79
October 4th, 2010
Toni,
Ako nemas karticu onda je bank transfer opcija ali takodjer mozes imati svoj bankovni racun linkovan sa PayPal-om u kojem slucaju troskovi transfera su manji.
October 4th, 2010
Nista, brat mi ima Paypal pa je on za mene prebacijo.
Hvala i nadajmo se nejboljem
October 4th, 2010
HI I have done a lot of research into cjd as a friend has sporadic cjd is Irhad looking to get the pentosan polysulphate treatment…where does Irhad live?
October 4th, 2010
Hi cica,
You are right. Irhad is going for the pentosan plysolphate treatment in Soctland. He lives in London.
October 7th, 2010
Nevjerovatno, gledam uplate pa najvise iz Bosne i Hercegovine i Hrvatske. Nijedna iz bogate Australije, Kanade, Francuske, Holandije, Austrije, Italije, Svicarske, Svedske….
October 7th, 2010
I have just updated the above article with the following:
Irhad is currently in the Chelsea & Westminster hospital in London, following an operation in which a catheter was placed into his stomach. This catheter is used to feed food as Irhad has lost ability to chew and swallow food in a natural way. We are hoping that Irhad will soon regain strength as the PPS treatment is physically demanding. A member of Bosnia Appeal recently visited Irhad in the hospital and was given permission by his mother to publish a video of Irhad…coming soon.
October 7th, 2010
Cao,
Zaista se nadam da ce se vise ljudi odazvati i dati svoju pomoc. Nije uvijek bitno koliko damo, bitno je da damo, ali zapadni dio Europe moze vise od 5 funti. Nikad ne znate sta vama nosi novi dan.
Da li neko zna kako je Irhad sada?
Puno pozdrava iz Osla, i nadam se da ovi nasi doprinosi barem malo Irhadu olaksati ove teske dane.
October 8th, 2010
Cao NM,
Sinoc sam posjetio Irhada u bolnici i mogu reci da je bio puno bolje u odnosu na prethodna 3-4 dana kad je imao groznicu i infekciju pluca. Jos uvijek prima antibiotike za to. Hrana mu se sad daje pomocu katetera ugradjenog u stomak i ocekuje se da ce mu to pomoci da malo ojaca.
October 8th, 2010
admin molite nas uvljek drzi malo na aktuelnom kada otidjes kod irhada u posjetu. Ipak svaki dan mislim na njega i pitam se, kako li je!?
Pricao sam danas sa jednim Prijateljom Internistom Doktorom, ovdje u njemackoj o Irhadu, i reko mi je da je problematicno i da je nazalost veoma mala chanca da prezivi. Rekao je da je problem u tome sto to nije direktan virus nego nesto kao bjelance i da je to veoma mala stvar, ali sa velikim posljednicama. Nisam o toj struci pa i nerazumijem bas sve sta mi je objasnjavao.
Rekao je da je jedina chanca koja postiji, da se nesto nadje u naredni par mjeseci za tu bolest.
i tome se i ja nadam i vjerujem u to tako da se moram borit da irhad sto duzo ostane ziv, tako da se molim svaku vecer bogu da se to cudo desi.
Pozdrav saljem svom jaranu Irhadu
toni
October 8th, 2010
Toni, ovdje cu obacivati nove informacije svaki put.
Sto se tice tretmana sansa postoji sa ovim PPS tretmanom, koliko sam saznao bio je jedan slucaj prije 9 godina. Uradjen je PPS tretman i jos uvijek je osoba ziva s toga iskeno se nadam da ce i nas Irhad imati uspjesan tretman.
October 8th, 2010
super vidis to nisam znao
October 8th, 2010
kako se taj pps tretman zove ispisanim imenom?imas li ime od te osobe?
October 9th, 2010
Zove se Pentosan Polysulfate. Imas na engleskom kratki opis na wikipedia.
http://en.wikipedia.org/wiki/Pentosan_polysulfate
Ime pacijenta ne znam.
October 9th, 2010
Any updates on irhad?
Is he getting any better?
October 12th, 2010
Zelim, od srca, uspjesno lijecenje i brz oporavak !!!!!!! Proslijedila sam ovaj Apel….nadam se najboljem !!!!!
http://www.djecasarajeva.ba , Voli te cijelo , tvoje, Sarajevo….! Sretno Irhade..i , OZDRAVI NAM TI !!!!!
Koordinatorica Pokreta za Mir
October 13th, 2010
Ovo sam dobila od drugarice koja je neurolog na harvardskoj klinici,ali mozda Indira vec zna za ovo.
Na zalost nema bas puno experimentalnih terapija za CJD. Jedan od centara je UCSF, sa experimentalnim projektom http://memory.ucsf.edu/cjd/research/current/quinacrine, rukovodi ga nobelovac Prof. Dr. Stanley Prusiner.
Svi smo srcem i dusom uz Irhada i Indiru.
Ovo cu proslijediti i Irhadovoj mami.
October 13th, 2010
my friends suggested this:
Dr. Pierluigi Gambetti, Director
National Prion Disease Pathology Surveillance Center
Institute of Pathology
Room 419, Case Western Reserve University
2085 Adelbert Road
Cleveland, OH 44106
Telephone: (216) 368-0587
Fax: (216) 368-4090
Email: cjdsurv@cwru.edu
Website: http://www.cjdsurveillance.com/
Dr. Laura Manuelidis
Yale University School of Medicine
Section of Neuropathology
310 Cedar Street
New Haven, Connecticut 06510
Telephone: (203) 785-4442
Dr. Stephen DeArmond or Dr. Stanley Prusiner
Department of Pathology/Neuropathology Unit
HSW 430
University of California, San Francisco
San Francisco, California 94143
Telephone: (415) 476-5236
http://www.ninds.nih.gov/disorders/cjd/detail_cjd.htm#159823058
October 13th, 2010
The latest news from the hospital.
Irhad is feeling a bit stronger as the continuous food feed is making him stronger. This is indeed a good news and Irhad may be released from the hospital as early as Tuesday next week. However, Irhad is having small chest infection as he is still unable to control the saliva in his mouth and because of the constant lying in the bed on his back the saliva from the mouth is getting to his chest and causing the infection and unease.
@Vahida, hvala za informaciju. Poznat nam je ovaj tretman koji je eksperimentalan u tome da zaustavlja prione ali ima jako negativne popratne efekte na jetru kao i neke druge organe.
@Bilyana, Thank you for posting this useful information. I have called the first two doctors from the list but only got as far as the answering machine. Will try again until I get to speak to them.
October 13th, 2010
Hey ‘admin’, thanks for an update on Irhad’s health, we’ll do everything to spread the word and seek anything that might help him.
Do you know what’s the path forward for him now? Is he going to have an operation in Edinburgh?
Please let me know if you’re not able to reach doctors in Cleveland. I might be able to send someone directly to contact them.
October 15th, 2010
Mislim da bi se trebalo kontaktirati Dr. Burzynskog u hustonu Texsas i vidjeti sta on kaze pomogao je ljudima sa razlicitim tumorima i cancerima na mozgu pa bi mozda mogao i vama pomoci
Dr. Stanislav R Burzynski
tel.(713)335-56797
October 16th, 2010
Jako mi je zao sto cujem ovo sto se desilo.
Irhad mi je bio dobar kolega preko flightsima, i pomogao mi je upocetku, upute itd.
Sve najbolje Irhade, da sto brze ozdravis!
Haris Dedic, Danska.
October 17th, 2010
Hey,
I hope Irhad is feeling stronger. It’s just very weird because one person you talk to one day could be very ill the next. Feel strong.
-Chris M.
October 21st, 2010
Hey,
I talked to and played with Irhad on Vatsim, the online virtual flying portal for many times. He has been always so friendly and helpful to me and other virtual pilots from Kosovo, and now it’s so hard to see him ill on this video.
Two days ago we collected some 62GBP among friends and sent them via Paypall to the above-mentioned account. It was very easy, and I invite others to do the same.
We thank his Mother for supporting Irhad to recover as soon as possible, and once recovered, we wish to meet this great guy in person.
God give him and his mother strength and show mercy with them during these challenging times.
Albion Idrizi
Prishtina
October 25th, 2010
Hi,
Is there any news about Irhad? How is he doing?
I pray and hope that he’ll get better.
November 1st, 2010
Imali sta novog o irhadu? Kako je?
November 3rd, 2010
Just spoke to Irhad’s mum and here is the latest info: The impact from the last operation was harder than expected. The main problem now is the fact that the wounds are not healing in a normal fashion. The healing is slow. Irhad needs to be repositioned in the bed often and the carers when performing this operation sometimes renew the wounds. The symptoms of the desease are still the same. The food and medication are constantly fed through the cateter and this seems to be working fairly well.
I am planning to see Irhad next week and then I should have more informatin.
November 4th, 2010
jel jos u londonu ili je to vec bila opercaija u skotskoj?
November 23rd, 2010
Vozdra,
Sta se desava, kako je Irhad?
November 29th, 2010
selam to everyone yes this indeed is a very sad story but there is a cure for all diseases with gods will
the cure that our beloved prophet suggested we use is BLACK SEED OIL – one teaspoon of honey and one teaspoon of oil mixed with warm water used every day should cure all diseases except death itself.. take care
December 5th, 2010
Pozdrav svima
sinoc sam razgovarao sa Indirom i ona kaze da je Irhadovo stanje jos uvijek veoma promjenljivo. Uglavnom iduce sedmice ona ocekuje da ce konacno Engleski NHS donijeti odluku o operaciji u Edinburghu. Inace ova operacija sto zbog administracije sto zbog Irhadovog zdravstvenog stanja kasni vise od tri mjeseca. Ostaje nam da se pomolimo za njegovo zdravlje.
December 8th, 2010
pa to nije normalno, kolko to traje da odobre tu operaciju. kao da cekaju da se to od samog rijesi.
Zalosno, pogotovo sto se to desaje na zapadu!
Pozdrav
Toni
February 17th, 2011
Imali koja novost o nasem prijatelju?
Pozdrav
February 22nd, 2011
Toni,
Kad si ti pisao komentar ja sam bio kod Irhada u posjeti. Irhad trenutno prima nove lijekove, koji su u biti eksperimentalni. On je malo bolje i vidi se da je snazniji ali ukupno stanje i dalje nije dobro.
Ovom priliko zelim prenijeti zahvalu od Irhadove mame svim donatorima koji su pomogli preko Bosnia Appeala. Novac koji je doniran je utrosen na instaliranje pomagala u stanu da se Irhad moze svaki dan prebacivati iz kreveta u kolica u kojima treba da sjedi po nekoliko sati dnevno. Taj proces je bio fizicki jako naporan za Irhada ali uz pomoc instaliranog pomagala ovaj proces je znatno olaksan.
Lijep pozdrav
February 22nd, 2011
Dear all,
I went to see Irhad last week and here is an update.
Irhad is still at home and is currently receiving a treatment. This treatment is experimental but is helping him to feel better and stroger but the overall health condition is still a big concern.
Also, I’d like to pass a message of thanks from Irhad’s mother. She is very gratefull for all donations received via Bosnia Appeal. The money has been used to install the rail system on the celieng in their flat. This helps with lifting Ihrad from the bed and placing him in the wheelchair. This is performed daily and until now caused great stress to Irhad and all people who are looking after him. Once again thank you very much.
Best regards.
June 2nd, 2011
Kako nam je Irhad?
August 2nd, 2011
Tuznim srcem javljam da je moj Irhad, najvoljenije bice svih svjetova nasao svoj vjecni mir i preselio na Ahiret U SVOJOJ 24.GODINI ZIVOTA, u utorak 26.07.2011. rano ujutro u 3.45! Hvala svima onima koji su mi davali podrsku kroz svo vrijeme njegove teske i duge bolesti i izrazavam iskrenu za…hvalu na rijecima utjehe i saucesca. To divno bice, moje dijete, moj Irhadic ostavio je mnogo radosti u mome srcu koje samo jedan roditelj moze pozeljeti. Othraniti takvog ljudinu od malih nogu je bilo uzivanje i moja radost i moje zadovoljstvo, moja sreca… ne mogu opisati kolika je moja tuga, ali znam da ne postoji ni jedna stvar u zivotu koja moze zamijeniti ni jednu sekundu radosti i uzivanju sa njim…koliko mi nedostaje to se ne moze rijecima iskazati…ali Bog je htio drugacije… HVALA SVIM ONIMA KOJI SU GA NA BILO KOJI NACIN POZNAVALI NA ISKRENIM RIJECIMA SAUCESCA! STA DA KAZEM VISE? JEDNO JE SIGURNO, POSTUJUCI OSJECAJE SVOGA DJETETA I VJERUJUCI MU U BESKONACNOST JER TO JE IRHAD ZASLUZIO, VOLIM SVE I SVIJU KOJI SU IRHADU NESTO ZNACILI U ZIVOTU… IRHAD JE VOLIO BOSNU I NA NEOBICAN NACIN JE BIO VEZAN ZA SVOJU ZEMLJU. STOGA JE MOJA ODLUKA DA GA SAHRANIM U BOSNI DIO NJEGOVOG ZIVOTA I VJENOG MIRA. U TOKU SAM OBAVLJANJA PAPIROLOGIJE SA ENGLESKIM I NASIM VLASTIMA, TE NEZVANICNO OBAVJESTAVAM SVIJU DA JE DZENAZA/SAHRANA U BOSNI, U SARAJEVU, NA GROBLJU VLAKOVU.